Welcome

Information about epilepsy and how to reduce risk

Epilepsy Information

You can find information about epilepsy, seizures, treatment options and basic seizure first aid from this booklet.

A copy of our seizure first aid flyer can be downloaded.

Managing Risk

Reducing your risk of accident or injury is an important step towards good epilepsy management and you can find an article about risk and a risk reduction checklist here.

Epilepsy Management Plans help to keep you or your loved ones safe and ensure that others know how to provide support in the event of a seizure. You can find free templates for Epilepsy Management Plans and Emergency Medication Management Plans here.

Seizure Alert Technologies

Epilepsy WA maintain a list of all the seizure alert technology options that we know to be available, including a quick reference guide as to their price, features and availability. More information here.

This fact sheet is best viewed in combination with our free webinars on the topic which can be viewed on our website.

Seizure Bed Mat Loan Service – Epilepsy WA loans out the Emfit Epilepsy Sensor Alarm Bed Mats to our members free of charge for one month for evaluation purposes only.

NightWatch Loan Service – Epilepsy WA also loans out the NightWatch seizure alert device for evaluation purposes, for a period of one month, for the use of children (ages 4 and above) and young people. Terms and conditions apply to our seizure alert loan programs. Contact [email protected] for more information.

In House Seizure Alert and Head Protection Display

Epilepsy WA has the largest physical display of seizure alert technologies in Australia. We also have several helmets and head protection options for both adults and children on display.

For those who experience tonic clonic, atonic or drop seizures or just want some extra protection during a seizure, these items may reduce the likelihood of a head injury.

To arrange to visit either of our displays, please email [email protected] for an appointment.

Children’s Book Loan Library

Epilepsy WA offers a free loan library featuring children’s books that help children with epilepsy, their siblings, and classmates to understand about epilepsy and seizures.

These books may help to reduce fear, trauma, and stigma. These books may also be useful for children living with seizures, their friends, or siblings and children who are witnessing a parent or a loved one having seizures.

To view a list of books available to loan click here.

If you would like to borrow a book please e mail [email protected] with your name, address, child’s name and age and your book preference.

Epilepsy WA Support Services

The Epilepsy WA information line 1300 660 880 operates from 9.00am to 5.00pm Monday – Friday.

If you need urgent support the below numbers may be of interest:

Immediate Support for You and Your Loved Ones

If you are in need of urgent support, please consider contacting one of the following agencies:

• Health Direct – 1800 022 222 has nurses available on their telephone helpline 24/7.
• Lifeline WA – 13 11 14

Further assistance can be found via this link https://www.mhc.wa.gov.au/getting-help/helplines/

Specific Support for Carers

Carers WA offers free counselling and other support services, visit www.carerswa.asn.au to find out more or call 1800 422 737.

Registered Nurse

Our Epilepsy Registered Nurse Educator and support team are available on 1300 660 880 to answer your epilepsy related questions, to provide information and support, pathways to other services, assistance with care plans and risk reduction strategies, to help you or a loved-one to better manage an epilepsy diagnosis.

Our Compassionate Ear Service

We offer a compassionate ear service, in which a qualified counselling volunteer with a lived experience of epilepsy provides support and information to anyone in need.

Please note this service is not intended to replace professional counselling.

This phone service is available between Wednesday 10.00am and 1.30pm.

Please call 1300 660 880 to speak with Hayley or contact the office to arrange for an appointment over the phone.

Face to face appointments are available by appointment only, terms and conditions apply.

Epilepsy WA Monthly Support Groups and Monthly Information Sessions

We run monthly face to face support groups, subject to COVID restrictions:

• Nedlands
• Armadale
• Midland
• Joondalup (Evening group)
• Bunbury

You can find information about the support group schedules on our website.

We also run a monthly online support group through Zoom for those who are unable to access our face-to-face support groups.

Please email [email protected] if you are interested in attending one of our support groups.

Facebook

We have an active, vibrant Facebook page so feel free to like our page to stay up to date and connected with our community.

Epilepsy WA Education And Training Services

Epilepsy WA Online Seminar Series

Epilepsy WA offers a range of free online seminar sessions on our website which can be viewed from a smart phone, tablet, or PC. Topics include Memory, Stress Management and Sleep.

We have also recorded informative interviews with several the manufacturers and distributers of seizure alert devices here in Australia.

All seminars and recordings can be accessed here.

Training for Teachers, Carers, Disability Workers and Community Members

Epilepsy WA offers affordable face to face and online automated training about epilepsy, seizure first aid and emergency medication administration. For more information click here.

Epilepsy Smart Schools

Epilepsy WA is currently implementing the Epilepsy Smart Schools program in WA and we are encouraging all schools to become recognised as Epilepsy Smart.

For further information about the initiative and to access free curriculum resources, care plan templates and help sheets for parents, students, teachers, and school communities, please click here.

Free help sheets for parents and school staff about epilepsy and its impacts can be accessed here.

Epilepsy WA Membership

Epilepsy WA receives no government funding and relies on the support of the WA community.

A strong membership base also helps gives us the strength to lobby for positive change.

It costs $30 a year for a single or $25 concession and organisations can access all the benefits of membership for just $50 per annum.

It is a great way to stay up to date with information on EWA activities and provides great benefits such as free loan of our seizure alert mats and special discounts on training.

You can become a member on our website or alternatively send us an email and we can forward the membership form to you.

Thank you for your interest, if you are awaiting a call back, we will be in touch.

Warm regards,

The Epilepsy WA Team

DISCLAIMER

Important Message: The information contained within this website is not intended to take the place of individual medical advice. Do not make changes to treatment or medications without first discussing with your treating clinician.