Welcome

Epilepsy WA Office

Epilepsy WA respectfully asks that you do not visit our offices without an appointment as we may not always have team members available to see you.

Contact us to arrange an appointment.

As part of our support, we provide information on seizure safety, risk reduction, ways to better manage epilepsy, as well as access to education, training and support services for people impacted by epilepsy across Western Australia.

Please note – all information provided is general in nature and is not intended to take the place of individual medical or professional advice.

INFORMATION ABOUT EPILEPSY AND HOW TO REDUCE RISK

Epilepsy Information

Download a copy of our seizure first aid flyer.

Managing Risk

Reducing your risk of accident or injury is an important step towards good epilepsy management.
Information about risk reduction and a risk reduction checklist.

Epilepsy Management Plans help to keep you or your loved ones safer and ensure that others know how to provide support in the event of a seizure.
Free templates for Epilepsy Management Plans and Emergency Medication Management Plans.

We also provide information about Sudden Unexpected Death in Epilepsy (SUDEP), including ways to better understand this risk and the steps that can be taken to reduce risk.

Epilepsy WA has webinars presented by Dr Nicholas Lawn available to view:

• SUDEP – Let’s talk about it
• SUDEP – Let’s talk about it again

In these talks, Dr Lawn discusses SUDEP and the steps you can take to reduce your risk. We understand this can be a sensitive and sometimes confronting topic. Epilepsy WA is available to support you on 1300 660 880 should you have questions after viewing these talks.

These talks are general in nature and should not take the place of a conversation about your individual risk with your treating doctor.

Epilepsy WA also provides information about identifying and avoiding seizure triggers such as missed medications, lack of sleep, excess alcohol and more, as well as information about seizure alert devices which may be used as one part of an overall risk reduction plan.

EPILEPSY WA EDUCATION AND TRAINING SERVICES

Training for Educators and School Staff, Families, Carers, Disability Workers and Community Members

Epilepsy WA offers affordable face-to-face and online automated training about epilepsy, seizure first aid and emergency medication administration.

Our training options include:

• Onsite face-to-face training tailored for workplaces, schools, organisations and community groups.
• Easily accessible online eLearning modules, allowing individuals and organisations to complete training at a time and place that suits them.
• Monthly face-to-face training sessions held at The Niche in Nedlands, providing a convenient way to access up-to-date training throughout the year.

More training information.

SEIZURE ALERT TECHNOLOGIES

Epilepsy WA maintains information about seizure alert technology options currently known to be available, including a quick reference guide outlining features, pricing and availability.

We also provide free webinars, Seizure Alert Device Information Sessions and workshops to help people understand available technologies, how they work and what options may be suitable for different seizure types.

In-House Seizure Alert and Head Protection Display

Epilepsy WA has the largest physical display of seizure alert technologies in Australia.

Seizure Alert Device Loan Program

Our Seizure Alert Device Loan Program allows eligible individuals to trial selected devices for evaluation purposes. Terms and conditions apply.

Seizure Bed Mat Loan Service – Epilepsy WA loans out the Emfit Epilepsy Sensor Alarm Bed Mats to our members free of charge for one month for evaluation purposes only.

NightWatch Loan Service – Epilepsy WA also loans out the NightWatch seizure alert device for evaluation purposes, for a period of one month, for the use of children (ages 4 and above) and young people.

For more information about seizure alert technology, webinars or loan programs, contact: [email protected]

Head Protection – We also have several helmets and head protection options for both adults and children on display.

For people who experience tonic-clonic, atonic or drop seizures, or who would like additional protection during a seizure, these items may reduce the likelihood of a head injury.

Please note that this service is by appointment only.

To visit our display, please email [email protected] to make an appointment.

CHILDREN’S BOOK LOAN LIBRARY

Epilepsy WA offers a free loan library featuring children’s books that help children with epilepsy, their siblings, and classmates to better understand epilepsy and seizures.

These books may help reduce fear, trauma and stigma and may be useful for children living with seizures, their friends, siblings, classmates or children who are witnessing a parent or loved one having seizures.

A list of books is available to loan. 

EPILEPSY WA SUPPORT SERVICES

Epilepsy WA Support Team

The Epilepsy WA Support Team, including our Epilepsy Registered Nurse, Paramedic and support team, are available on 1300 660 880 (9.00am to 4.30pm Monday to Friday) or (08) 6556 6455 to answer epilepsy-related questions, provide information and support, provide pathways to other services, assist with care plans and risk reduction strategies, and help you or a loved one better manage epilepsy.

Immediate Support for You and Your Loved Ones

If you are in need of urgent support, please consider contacting one of the following agencies:

• Health Direct – 1800 022 222 has nurses available on their telephone helpline 24/7
• Lifeline WA – 13 11 14

Further assistance can be found online.

Specific Support for Carers

Carers WA offers free counselling and other support services. Visit: www.carerswa.asn.au or call: 1800 422 737.

Our Compassionate Ear Service

We offer a Compassionate Ear Service, in which a qualified counselling volunteer with a lived experience of epilepsy provides support and information to anyone in need.

Please note this service is not intended to replace professional counselling.

This phone service is available Wednesday between 10am and 1.30pm.

Please call (08) 6556 6455 to speak with Hayley or contact the office to arrange an appointment over the phone.

Face-to-face appointments are available by appointment only. Terms and conditions apply.

Epilepsy WA Monthly Support Groups and Online Support Group

Epilepsy WA provides monthly support groups for people impacted by epilepsy, their families and carers.

These groups provide an opportunity to connect with others, share experiences and access information and support.

Face-to-face support groups are held at:

• Nedlands
• Armadale
• Midland
• Fremantle
• Joondalup (Evening group)
• Bunbury

We also run a monthly online support group through Zoom, allowing people from anywhere across Western Australia to connect with others impacted by epilepsy, particularly those who may be unable to attend a face-to-face group.

More information about support group schedules.

Facebook

We have an active, vibrant Facebook page so feel free to like our page to stay up to date and connected with our community – www.facebook.com/EpilepsyWA/

PRIVACY

Please let us know if you do not wish to remain on our databases.

DISCLAIMER

Important Message: The information contained within this website is not intended to take the place of individual medical advice. Do not make changes to treatment or medications without first discussing with your treating clinician.