About Us
Our Board of Management elected at the AGM for 2015/16 was as follows:
President: Mark MacLeod
Treasurer: Peter Kilkenny
Committee Members: Catherine Harrison
Harriet Chan
Rod Lillywhite
Dr Catherine Harrison

Mark Macleod

Mark Macleod

Mark is a family man, 58 years old, a member of the Securities Institute of Australia and has been a financial planner and stockbroker for 26 years, the last thirteen with Patersons Securities Limited.

He plays golf at Mosman Park and tennis regularly at a local club, enjoys an active social life and has a reasonably healthy attendance record at a local gym.

Mark has been on the Board of the Epilepsy Association since 2000, President for the past three years and in that time has seen the organization become not only financially viable, but also increase its profile to the point we are now receiving some financial assistance from the State government. He is very keen to ensure the Association continues as an effective voice for those living with epilepsy and maintains its independence as a state body to ensure there is a focus on local issues.

Rod Lillywhite:

Rod spent 16 years as a teacher and administrator in both Government and private schools. He then commenced a career in financial planning with a large independent organisation and was eventually   invited  to become  a partner.  Rod was an initial partner of the national organisation known as Shadforth Financial group. Rod retired from Financial Planning in 2010.

Rod joined the Board of Epilepsy WA in 2012.  His managerial skills include financial and organisational management.

Rod is also  a Board member of Parkinson’s WA and is the state representative of the Board of Parkinson’s Australia.

Rod’s studies include  a Bachelor of Arts, Masters of Educational Management and a Diploma of Financial Planning.


Rod Lillywhite


Peter Kilkenny

Peter is 56 years of age and has completed a Diploma in Real Estate and is a Licensed Agent.

He has been in Real Estate since 2001.

He took up a position as a Director for Professionals in Midland in 2006.

And has recently decided to open his own Real Estate business in High Wycombe

called Kilkenny Realty of which he is the Licensee.

Peter had a Brain Aneurism in 1998 which caused a major trauma and turning point in his life.

He ended up with Epilepsy from the brain operation.

He joined an Epilepsy Support Group in the year 2000, through which he achieved considerable benefit. He then realised that he wasn’t on his own with this dreaded condition that nobody understands or wants to talk about, and least of all, admit that they’ve got it.

From the year 2000 – 2004, Peter realised that he was definitely not the worst sufferer out there, and through the support group meetings there was a lot of people whom he could help.

After 4 years at the Support Group Meetings which were held monthly he decided he wanted to do more.

So he filled in an application to become a Board Member.

Since then has always remained a Support Group Member and continues to help other people with this condition.

Epilepsy is a condition that we need to educate and make more people aware of.

We can only do that by talking about it.

Remember, a problem shared, is a burden lifted.

Kind regards

 

Peter Kilkenny

0408 921 976



Harriet Chan

Harriet Chan

RN
MSc Medical Neuroscience GDipEd Cert IV WTA
PG Cert Neuroscience Nursing B.nurs

Harriet is a health professional with enormous passion in neurosciences health management. She has held positions including clinical nurse specialist, clinical nurse consultant and educator, and university lecturer postgraduate neuroscience programs within Western Australia; in addition to clinical and teaching work Harriet has delivered a number of blended neuro education programs to neuroscience nurses in Tasmania, NSW, Victoria and Indonesia; and has a number of published research papers in international nursing journals.

Harriet, being called the “neuro guru” by all her colleagues, was allured by Kathy McCoy the Executive Director to the Neurological Council of Western Australia, where Harriet now works as a Workforce Development Consultant. In this role Harriet provides a consultation service in education and development to the NeuroCare Program interprofessional team and also the neurological community at large.

Harriet has professional affiliation with the Stroke Society of Australasia, Epilepsy Society of Australia, Australasian Neuroscience Nurses Association, Multiple Sclerosis Nurses Australasia, Community neurological Nurses network, World Federation of Neuroscience Nurses and International organisation of MS Nurses.

As a board member of the EAWA Harriet aspires to support the work of the Association in helping people to overcome challenges created by epilepsy.

Dr Catherine Harrison

Catherine Harrison

Catherine is a U.W.A medical graduate (MBBS 1994) who retired from medical practice to care for her three children, one of whom has epilepsy. She worked mainly in psychiatry and palliative care and completed a Diploma of Gestalt Therapy (Gestalt Therapy Australia 2001).

Catherine joins the board of Epilepsy W.A. as a mother experiencing the day to day difficulties of a child with unstable epilepsy in a community where she has trained and worked in medicine. Her hope is that being on the board will help facilitate understanding and communication between patients, their families, and the professionals which treat them.

How We  Conquering EpilepsyStarted

Our first meeting was held at Royal Perth Hospital in 1963.  The organiser, Ruby Hutchinson, MLC, called that meeting "to fight discrimination against people with intellectual disabilities.” Our name has changed from the West Australian Epilepsy Association and Ruby is now deceased, but that vision continues undiminished today.

We have grown since that first meeting. We moved to 14 Bagot Road, Subiaco in 1965, and we changed our name to the Epilepsy Association of Western Australia (Inc), (EAWA) in 1998. We moved into our present location adjacent to Sir Charles Gardiner Hospital at the corner of Aberdare Road and Hospital Avenue, Nedlands in June 2002. We share this location, known as the Centre for Neurological Support – The Niche with 14 other neurologically based organisations, the Independent Living Centre (ILC) and Cystic Fibrosis.

Who We Are

EAWA is run by a committee of seven volunteers (details above) who are elected as office bearers annually. The CEO has a seat on the Board of Epilepsy Australia, the national coalition of state epilepsy associations. EAWA is an associate member of the Neurological Council of WA, a group of organisations who work together to provide greater understanding of neurological disorders.

We have an additional six or so volunteers who work in our office.

All our volunteers are motivated by the concern that many families affected by epilepsy need help and can't access that help though other channels. As a non-profit, EAWA is seeking to break down misconceptions about epilepsy.  Our goal is to educate the general public and individuals about the real facts about living with epilepsy

Aims and Objectives

To educate those with epilepsy, their family, friends and society, to enable the epilepsy sufferer to integrate successfully in the community, and enjoy a full and productive life-style

EAWA Services and Activities

Advisory Service:  Our staff and volunteers are available to discuss queries either by phone, or on a one to one basis at the Association's office.  If you prefer to remain anonymous, we understand.

Library: Anyone who visits the association may access our library of books and videos. Our borrowing service is available to members free of charge.

Support Groups: Anyone affected by epilepsy is invited to join our monthly meetings. Group meetings are also held at the Niche and in Gosnells Please contact EAWA for details.

Speakers: You can arrange for one of our speakers to talk to the media, to visit schools, nursing homes, businesses or any interested community organisation.

Annual Seminar: Our annual seminar gathers experts including doctors, health care professionals and other service providers to share the latest information on epilepsy, its treatments, etc.

Support Research: We seek donations and research assistance so we can sponsor continued research on epilepsy treatment and management.

Regular Newsletters: We send our members a quarterly newsletter to keep members abreast of what is happening in our organisation, in the medical community and in the larger community.

Epilepsy Support

Donations to the Association are always welcomed.

Patron

Lisa Scaffidi

Mayor of the Month for May 2012* Lisa Scaffidi
Lord Mayor of Perth

By Brian Baker, Senior Correspondent

19 June 2012*: “From my first day in office l have been - and will remain - a very accessible and public-focussed mayor,” Lisa Scaffidi, Lord Mayor of Perth, Western Australia, told City Mayors. She regards social media as the promotional tool of the 21st century and says she communicates through Facebook and Twitter with many citizens which she could not reach by more traditional means. “l have a visibility and the people get to know what l stand for and do. It is much more effective than a 30-second TV advertisement.” Lord Mayor Scaffidi was awarded the World Mayor Commendation 2012. She has also signed up to the City Mayors' Code of Ethics.

Lisa Scaffidi was first elected Lord Mayor of Perth, Western Australia, in October 2007. She defeated the outgoing Deputy Lord Mayor Michael Sutherland winning 56 per cent of the votes. She stood for re-election to a second four-year term in October 2011 and won with a margin of 25 per cent over her principal challenger, businesswoman Anne Bontempo.

Following her re-election for a second term, Ms Scaffidi said: "l am glad this was a contested election. The voters have given me a strong mandate to progress the important projects and programs for our city’s exciting future."

Mayor Scaffidi became a member of Perth City Council in 2000. She told City Mayors "I had become involved in local issues and subsequently politics within the neighbourhood to which l had moved in 1998. In early 2000 some people encouraged me to run for Council so l did so and won. From day one l discovered a whole new world that l found incredibly interesting and particularly the discussions around the city and urban planning. I have always loved cities and thinking about what makes them 'tick'."

Perth Waterfront

Leading Perth requires a broad perspective because it is the core of a conurbation of 1.6 million people and of the whole of Western Australia so the Lord Mayor, especially, has to be aware of that responsibility and opportunity.

Perth City Council employs more than 500 people and though it is not directly responsible for schools or acute health care it has involvement in and impact on nearly everything. The authority sees its core responsibility as to manage the growth and development of Western Australia’s capital city.

The Council staff are organised into four directorates. The Services Units directorate is responsible for most of the day-to-day high profile activity including child care, community services and libraries. The Business Unit directorate is responsible for contracts, direct public works interventions including parks and vehicle parking. The remaining elements of the council are within either the Corporate Directorate or the Planning and Development Directorate.

During her first term the Council produced its 2009 four-year plan and the mayor will now oversee its 2013 successor. She is strongly promoting sustainable growth and both the city strategy and its organisational structure reflect that. In 2008-9 they hired legendary urban designers Gehl Architects to produce a Public Spaces Public Life plan, which was incorporated in to all the current strategies.

Lisa Scaffidi says: "I am very pro smarter and more sustainable use of our land. I do not believe that it comes with loss of conservation but that it enables and actually promotes more conservation through smarter and more focussed land use and planning."

Amongst action across a range of fronts the city is currently implementing its 2011-2014 Physical Activity Strategy and Health and Well-Being policies whilst continuing with to secure sustainable developments which knit the urban form together and provide an attractive urban environment for inward investors and established businesses, existing and new residents and support of the success of its higher education, research and cultural industries sectors.

Mayor Scaffidi was the Chief Executive Officer within Western Australia for the business led Committee for Economic Development of Australia for 11 years until becoming mayor in 2007.

She recalls “in that role l was aware of the increasing strength and importance of Western Australia to our national economy and of the growth of Perth as the western gateway to our continent.”

Her principal election slogan in her 2007 campaign was ‘Get Perth Moving.’ After she won she claimed that her election was testament to voters being ready for change in the city. Her campaign in 2011 was a call for a continuation of this process. “In 2007 the people endorsed my view that it was time to turn the vision for a vibrant Perth into reality. It was time for action – to build a city for tomorrow.”

She emphasises continuity now underpinned by “an action plan endorsed by the community.”

Mayor Scaffidi says “l have a strong economic development focus this term. We already have so much major construction occurring in our city that we cannot commit to more but what we need to do is encourage business and trade opportunities and to look at ways business can be enhanced and be encouraged to work more smartly and efficiently.”

“We have started major projects which were talked about for decades,” she says. “These will mostly be completed during my second term. We will focus on maintaining strong communication to ensure we keep the confidence of the public during the often disruptive construction phase of these projects.”

Lisa Scaffidi’s determination to get Perth moving forward was epitomised by her unwavering promotion of two major projects in particular. These had been planned and discussed for a long time without coming to fruition. They are the redevelopment of the city waterfront and the Northbridge link. Northbridge, to the north of the city centre core, has been separated from it by a railway which is now being lowered into cutting and replaced on the surface by an attractive boulevard which will become the central city’s principal north-south axis.

The commitment to delivering these complex schemes was tested along the way but the mayor has maintained support for them and other developments especially from younger residents. She emphasises there is a strong connection between capacity building and support for arts and culture. “We will generate a denser, larger central city with twin axes which will accommodate all the mining and oil and gas and other national and international companies which want a presence here and also all the other elements of a vibrant central area,” she says.

“A vibrant arts and culture community within a city serves us well by enhancing our quality of life, building on opportunities for youth and creating a competitive edge in attracting and retaining businesses and skilled workers.”

“From my first day in office l have been, and will remain, a very accessible and public-focussed mayor,” says Lisa Scaffidi. “I believe that is how the role should be undertaken and l have proven that this has improved community confidence and our city’s credibility. I see myself as a ‘connector’ and love being able to bring people and opportunities together for our city.”

During her first four and a half years as the Lord Mayor Scaffidi has been very active in use of electronic social media to communicate with citizens especially the younger people. She has reached her limit of 5000 friends on the Facebook website. She has a reputation of answering emails within 24 hours too.

She explained to City Mayors her thinking on this issue. “I have embraced social media as a great way to communicate with many people who would not otherwise have connected with what l do. Previously the role of a Lord Mayor and what it is that keeps them busy was a mystery to many. But through Facebook and Twitter, which l see as the promotional tools of the 21st century and a new form of literacy, l have a visibility and the people get to know what l stand for and do. It is much more effective than a 30-second TV advertisement.”

“I don’t worry about privacy issues as l post responsibly and do not get too personal with it. Social media is here to stay and it is truly helping us to encourage our citizens to realise Perth’s place in the nation and globally.”

Her inclusive outgoing approach was exemplified when she chose to give an interview to ‘Out in Perth’, the city’s gay and lesbian magazine, a short time after her re-election. In part, too, this was to thank the many members of that community who changed their Facebook profiles to read ‘Team Lisa’ during the campaign.

Lisa Scaffidi says in 2030 Perth will be “a city that, through a lot of good planning, has learned from others and embraced sustainability. I believe our city will be seen as a global city of substance and that our citizens will be very energised. Our business opportunities will have flourished thanks to our abundance of resources in Western Australia and we will also have encouraged other sectors with a focus on education, culture, science and medicine.”

Like most successful mayors Scaffidi has had to think about governance structures and tiers. Reform is under way in Western Australia with the number of local authorities set to be reduced and whilst not calling for specific changes at a sensitive time she emphasises the significance of the issue.

“For the next 50 or so years it is going to be how our tiers of government work together and how well we plan and implement smart growth and change that is going to truly test us and prepare us for the future.”

Some criticism of Lisa Scaffidi during the 2011 re-election campaign focussed on her international travel but she insists it is a necessary part of the job. “I have a clear vision of the benefits and leverage we can have for Perth through the connection to and the work with specific and targeted international locations.”

She says she should be judged on achievement not cost on trips and cites her recent travel to Sichuan Province in China and a new co-operation agreement with its capital Chengdu.

Lisa Scaffidi says close links across several sectors with a region with a population of 80 million people will be critical for Perth and Western Australia going forward. “These links will also support our role in the area of education. Perth is now seen as a major education provider for many students from all over the world which serves our city well by bringing diversity and obvious economic benefits.”

“I enjoy promoting our city as an attractive and smart place for business to operate in. Perth has great global relevance now and with our world-class academic institutions also embracing overseas growth opportunities we are creating the right environment for the future.”

Amongst its international networking activities, the City Council is a member of the World Energy Cities Partnership.

Before taking up her post with the Committee for Economic Development Scaffidi amassed a broad range of experience in several economic sectors. She worked in health after graduating in dental therapy, transport, in which she was an airline steward, hospitality, marketing and exporting.

Lord Mayor Lisa Scaffidi has been shortlisted for the 2012 World Mayor Prize

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